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A message from Sidney MacDonald Baker, MD, Co-founder and Emeritus Medical Director of Defeat Autism Now!
To: Fellow members and friends of the Autism Research Institute family.
Medigenesis.com is a “library” where instead of old books you will find the anonymously shared experiences of children like yours. The children are similar to yours not only because of a diagnostic label, such as autism, PDD, asthma, or colitis – but with a likeness portrayed in a fully-remembered, detailed description that defines each child as an individual. You can easily find those who are most like your child so that you may consider data that tells you what worked for closely-matching groups of children.
The requirements for your participation in our private beta are that you are:
- Relatively savvy about the Internet and computers.
- Motivated by a clear understanding of your obligation to provide accuracy and detail at the time you record and update the anonymous data.
- Well intentioned in terms of using Medigenesis.com as a serious part of record-keeping.
- Patient with aspects of the site that represent interface standards in 2001, when we regrettably had to put the site on ice due to the collapse of the Internet bubble. We are now engaged in a bootstrap operation. Your help in building the database will help us find resources to upgrade the site to today’s usability standards.
- Confident that the power of intention, integrity and good design will allow Medigenesis.com to grow from its own childhood to serve the large community of autism families and find a destiny as a new beginning in medicine.
I invite you to join a free beta-trial of such a “library” and help build a community of mutual support and information-sharing with the immediate benefit of well-organized reports that you can share with professionals to efficiently present a full picture of your child. As our database grows you will also gain near-term feedback from clusters of children who match yours. In addition, you will reap the long term benefits of a system that uses information technology as a “macroscope” to see otherwise invisibly large or hidden patterns.
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To get access to the free, private beta, please type your email address below. You will receive an email containing the information you need to access the site within an hour. If you do not receive an email, please be sure to check your spam folder.
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Medigenesis.com is very careful about your data privacy, and in any event does not require data permitting identification of individuals. The Medigenesis Privacy and Security policy is available online. The email address you type above will not be made available to Medigenesis.com.
Please visit http://www.medigenesis.com for more information. If you are have any concerns or questions, feel free to email us at info@medigenesis.com.
Disclosure: The Autism Research Institute has an ownership interest in Medigenesis.com as do I and a few angel investors who helped with its start up funding in 1999.
All the best,
Sidney MacDonald Baker, MD
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